A KELSALL couple who watched their young daughter lose her battle with cancer are determined to raise money for the hospice that looked after her so well.
Dave and Jackie Wilson of Chapel Green first realised there was something wrong with their three year old daughter Lydia when she woke up in the early hours of the morning.
Dave said: “She woke up at about 4am and started vomiting, and afterwards went into a sort of trance.”
Lydia was rushed firstly to Leighton Hospital and then to Alder Hey.
Dave and Jackie, Lydia’s twin Naomi, and their three other daughters watched Lydia go through tests and screening as doctors frantically tried to work out what was wrong with her. After months of tests doctors diagnosed Lydia with a rare form of brain tumour.
Dave said: “The best way I can describe it was like tree roots that had wrapped all over her brain like a spiders web.”
Lydia went through 50 operations and a 12-month course of chemotherapy, but it failed to work so they tried a stronger dose of chemotherapy.
“This made her just so terribly ill,” added Dave.
For the last 12 months of Lydia’s life Claire House Hospice worked with Lydia and her family.
Dave said: “They were just so good to her, looked after and entertained her and she also really liked going there.”
Jackie and Dave decided they wanted Lydia to be at home at the end but after three weeks Lydia was so poorly they took her to the hospice.
She went in to the hospice on July 4 this year and died nine days later, aged six.
Dave said: “Jackie and I had three weeks off work afterwards - but it was horrendous. I just wanted to get back to work- because at home she had always been there with us.”
Dave and Jackie not only had their own grief to deal with but that of their daughters and particularly Lydia’s twin sister.
Jackie said: “She was very traumatised. She had been there and watched Lydia suffer so much. She was very angry and upset at first, but she is bouncing back now, very resilient.”
To help them through the family created a memory box, so special things of Lydia’s or memories can be written down and kept safe.