FINN Davidge-Hesketh may be smaller than average, but the plucky four-year-old has already overcome her first big hurdle – her first day at school.
Just half the size of children her age, Finn has a uniform which could fit a six-month-old baby.
But the intrepid youngster from Rhosllanerugog, Wrexham, lets nothing stand in her way despite being a primordial dwarf, which means she is among the smallest people in the world.
At 25in tall and 14lb in weight, Finn was born with an incredibly rare condition called microcephalic osteodysplastic primordial dwarfism type 2 (MOPD II).
Diagnosed at the age of two, she is the only primordial dwarf in North Wales, and only one of 150 in the UK.
Doting parents Jonathan and Melanie have to deal with the risk of life-threatening brain conditions that could develop at any time, as well as daily hurdles such as finding clothes and cutlery suitable for their daughter.
But while they know Finn’s life could be cut short, they are optimistic about her future after sharing stories and advice with families across the world.
“Most of the people we’ve come across with Finn’s condition have made it through to adulthood,” said Jonathan.
“Medical knowledge is so dated and there is no longer a bleak prognosis.
“As parents, we don’t wrap Finn up in cotton wool, we let her be herself. She goes to nursery with children her own age, which is very important for her social and academic development.”
He added: “People see her size before they see her when really she is no different to other four-year- olds – she is independent, feisty, bright, vibrant and curious.
“She has a great smile and lots of friends and will fit in well at Ysgol Babanod Borras Park Infants in Wrexham.”
Later this year Finn is off to hospital for her yearly MRI scan.
Primordial dwarfs must undergo regular checks for brain aneurisms and Moyamoya disease – two potentially fatal vascular conditions that could develop at any time.
Jonathan said: “We’re a bit apprehensive about the scan but you’ve just got to deal with it when it happens.”
Finn’s progress has been followed by cameras for TV channel Five’s Extraordinary People: Britain’s Tiniest Toddlers, which was screened yesterday.