More heartbreaking news has hit brave Demi Butler as she has been forced to postpone a weekend at home with her family.
The 11-year-old, who has been through an intensive isolation period at the Royal Manchester Children’s Hospital following her life-saving bone marrow transplant, was due to be sent home today (December 2).
The youngster, from Ellesmere Port, had been making remarkable progress since receiving her eight-year-old sister Ellie's bone marrow on November 3.
But Demi’s family began to fear the worst as her neutrophil (white blood cell) levels plummeted and her body started rejecting her sister’s cells.
However, she was determined to keep on fighting and made an incredible turnaround as her neutrophil levels increased day after day.
As a result of her progress, she was due to go home this afternoon and had planned to spend some quality time with Ellie and her two younger brothers, Mason and Alfie.
But today, the youngster has been left heartbroken after doctors were forced to cancel her visit following another drastic decline in her white cell levels.
Her uncle, Darren Butler, said he has ‘no words’ to describe how he feels following the news.
“Our excitement has been building over the last couple of days of the thought of Demi coming home,” he said.
“It is one very erratic emotional roller-coaster for us all.
“Sam, Demi’s mum, broke down in tears after hearing the news.
“She really wanted Demi home for a few days for her to see her brothers and sister and just for her to have a little normality back in their life.
“We all wanted her home to boost her spirits, but it’s the little steps that will lead her home.
“Demi has been remarkably strong and courageous over the last two weeks and seeing what she has battled through each day makes me so proud to be her uncle.”