Big-hearted motorcyclists are to create a sensory garden for a toddler born with a rare life-limiting condition.

The Chester chapter of the Taliesin Brotherhood is hosting the Route 41 Bike and Custom show at The Peacock Hotel in Christleton Road, Boughton this Sunday (May 1).

Monies generated will go towards improving the quality of life of youngsters like four-year-old Isabelle Gregory from Kingsway who has mitochondrial disease affecting brain function including her hearing and sight. And the biking community will use their skills to create a sensory garden for Isabelle at her home at a later date.

Jemma Gregory with daughter Isabelle in the garden of their Kingsway home.

The event itself is likely to be attended by 500-600 bikers and interested members of the public, with prizes and trophies for the best motorcycles on show within different categories.

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A special category has been created called ‘Isabelle’s choice’ for Isabelle to select her favourite bike of the day with the help of her mum and dad, Jemma and Craig. Mum Jemma says it is likely to be the ‘noisiest one’ as she loves the sound of the bikes revving.

The fun begins at midday and will carry on until the early hours.

Family entertainment

There will be family entertainment, food and beer, plus live bands and a rock night during the evening. Also featured will be trade stands and stalls including a tattooist.

Mike Morris, president of the Chester chapter of the Taliesin Brotherhood, said: "The Chester chapter of The Taliesin Brotherhood would like to invite anyone and everyone to our Route 41 Custom Show this coming Sunday at the Peacock pub in Chester."

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Mike, an account manager for a construction company, continued: "It's going to be a fun-filled day and night with lots of great prizes up for grabs, live music and trade stands.

"It's for a brilliant, worthwhile cause and we would love it if the surrounding community could join in and make it a day to remember," added Mike, who rides a Harley Sportster 1200 and a Yamaha Dragstar 1100.

Jemma Gregory and Claire Edge set up the SPACE charity

Proceeds will buy materials for Isabelle’s sensory garden. Any surplus will be donated to the SPACE charity – – set up by her mum Jemma to support parents of children with additional needs.

She originally set up the charity so mums and dads could support each other. But the long term aim is to set up a sensory centre in Chester.

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Jemma, who has other children Imogen, three, and Isaac, six, said of the fundraisers: “I met them for the first time last week. They are really lovely. It’s a really kind and generous thing for them to do.”

Isabelle Gregory, centre, with siblings Isaac and Imogen

She said an extension was built for Isabelle last year but the garden was currently inaccessible. A sensory garden would be ideal.

Jemma continued: “She loves going outside. She loves the wind and the sound of the birds. Because she’s visually impaired, we thought we would get wind chimes.”