GENEROUS Widnesians are raising cash for a toddler who suffers 140 fits a day due to one of the world's rarest forms of epilepsy.
The parents of Harry Whitley appealed for help through the Weekly News last year after their appeals to charities were rejected.
Now a Widnes rugby club and a football club - of which Harry's uncle Eddie is a member - are staging charity events to buy equipment which could help to boost his quality of life.
Harry's mum and dad Denise, 33, and Paul Whit-ley, 32, of Sycamore Avenue, said Harry had appeared 'twitchy' from his birth in April 2003 and was admitted to Alder Hey Hospital where tests showed seizures occurring in different parts of the brain.
The youngster is blind and quadriplegic, unable to use his limbs and is one of just 13 patients worldwide to suffer from his condition.
Denise said his seizures vary from 20 on a 'good' day up to 150 on the worst. His fits can happen once a minute and cause violent limb jerking and he screams and cries throughout the ordeals.
Harry has to be fed through a stomach tube and cannot hold his head up. He needs suction to clear his airway to prevent choking and he has to be fed slowly with a pump to stop him regurgitating his food.
Denise said the cash raised by the public last year had 'really made a difference', paying for equipment and sessions at Brain-wave, a centre for brain injured children. Denise said: 'Since leaving hospital our biggest surprise has been the lack of financial and practical help we are entitled to. We are not well off and have three kids as well as Harry. We know people who have received thousands of pounds from charities but we're not entitled.'
Now Moorfield AFC based at Moorfield Sports and Social Club is staging a race night at 7.30pm on Saturday, with sponsors S Evans and Sons, Saffron Indian Restaurant, Simple Delights, Joanne Claire hair salon, Offafix Reinforcements, Robbie Grace and Kingsway Timber.
Club manager David Ford said: 'Harry's situation is so tragic and his uncle Eddie Otten plays for our club and we thought we would do something to help.'
People are urged to attend a charity entertainment night tomorrow at Widnes RUFC on Heath Road. Doors open 7.30pm, entry £3.